香港神經肌肉疾病學會

Putting Brains in Muscles

Towards an Accessible Web-Based Health Education Platform on Neuromuscular Diseases

The Hong Kong Society of Neuromuscular Diseases

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Understanding "Neuromuscular Diseases"

What are Neuromuscular Disorders?

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Patient & Family

This educational website provides information on neuromuscular diseases, including disease profiles, diagnostic tests, nursing manuals, etc., to improve the quality of life of patients and their families.

Public

We have established this educational website to enable the public to understand neuromuscular diseases and share their experiences through patients to reduce misunderstandings, promote the equality and inclusive community.

Healthcare & Academics

We promote public education on neuromuscular diseases and the advancement of medical professionals. We organize different medical conferences to serve as a platform for an exchange of knowledge.

About Us

The Hong Kong Society of Neuromuscular Diseases Limited was established on March 25, 2015, to promote the development of medical professionals and public education on neuromuscular diseases to pay attention to the health of this particular patient group in Hong Kong. We operate in a non-profit manner. Our board members come from different medical specialties related to neuromuscular diseases, including the doctor of Children’s brain neurology, pathologists and more.

Sharing

不完美的完美人生

出生後不久,我便確診患上脊髓肌肉萎縮症(SMA)。當時醫生告訴媽媽我將活不過兩歲,這句話就如女兒被判處死刑一樣…

「罕罕」而談 我有兩個罕病

我—陳蔚斯,是陳氏家族的首位孫女,在出生以前的產檢、發育情況一切如常,在父母及祖父母的期盼下出生,生產……​

共同命運? 從接受到奇蹟

相信大部分病人,當醫生告訴你患上一個不治之症,第一時間一定無法接受,更何況是一個小學生?對於身患活不……​

幸與不幸 由我來決定

脊髓肌肉萎縮症是一個罕有的遺傳病,不知道是幸運還是不幸運我得了這個獎,它令我全身的肌肉無力,並且慢慢……​

Medical & Academic